Step by step
Discussions with patients and healthcare professionals in the Netherlands and abroad have shown that expertise on rare forms of arthritis is fragmented. More collaboration and the exchange of knowledge, experience and information between attending specialists and experts significantly improves patient care and their options for treatment. ARCH makes access to expert knowledge and experience possible.
We are working step by step with patients and healthcare professionals to bring this together. We already know a lot, but not everything. For instance, what do patients want themselves? What information is needed in order to make the right diagnosis? How can healthcare professionals best or most easily work together? We hope to find answers to these questions soon.
As we could not possibly deal with all the rare forms of arthritis at the same time, we have chosen to start with systemic sclerosis (SSc), Antiphospholipid syndrome (APS), ANCA associated vasculitis (AAV) and systemic lupus erythematosus (SLE). Studies show that that we can do the most for the patient in the short term for these particular conditions. Other rare forms of arthritis may follow in due course. Working groups on SSc, AAV and APS were established in 2017 and 2018.
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